Parenthood means signing up for the heroes’ league. We all know that parenting is the hardest job on the planet and that dedicated parents are heroes. But parenting with a disability? Which heroes’ league does it belong to?
Raising children while living with a chronic illness is no cup of tea. Rachel (33), a mother of three young kids, shares that becoming disabled while pregnant meant embracing a reality no one prepares you for. Transitioning from independence to relying on others while caring for a newborn can be an overwhelming and emotional experience.
“Becoming chronically ill and disabled at five months pregnant led to a period of significant ups and downs. There were difficult moments where l truly didn’t know how I would manage to care for my children when I couldn’t even care for myself”, says Rachel.
One of the most challenging aspects of parenting with a disability is dealing with feelings of guilt and the sense of not being enough for your children. The things you could do – if only you weren’t chair-bound, if only you weren’t exhausted all the time. Accepting who you are now, with everything that comes with it, takes immense courage and trust in life.
“I’ve transformed from the fun, energetic mom who took her kids everywhere into a mom who navigates life one day at a time. I face this internal conflict of feeling like l’m constantly disappointing my children – that I’m letting them down or failing them, while knowing that’s not the reality.”
Learning to ask for help is a powerful step. When things become too much, it’s okay to pause, breathe, and say – I need support.
“One of the immediate lessons my chronic illness and disability taught me was the importance of admitting when I’m not okay. I’ve realized you don’t need to force bravery when you’re struggling – that only causes you more difficulty in the long run. It truly is okay to ask for help. Taking time for yourself to regroup and re-energize is essential, not selfish, particularly for parents.”
What can make parenting with a disability easier?
Embracing assistive tools can make a huge difference in how much energy you have throughout the day. Use them proudly, without guilt! For daily routines and getting around, Rachel uses the Rollz Motion Performance: a modular 2-in-1 rollator and transport chair with air tires – an ergonomic, modern solution designed to offer reliable support when energy levels fluctuate.
“I’ve discovered that simple adjustments like sitting for tasks and utilizing mobility aids make a significant difference in reducing fatigue and keeping pain levels manageable. My Rollz rollator, especially, has been invaluable; I don’t know how I would manage my daily tasks without it”, Rachel added.
She shares with heartfelt honesty that her chronic illness has brought her family closer and deepened their bond, despite the challenges. “I feel this experience undeniably brought us closer. We’ve transformed into an incredible team, ready to face any challenge hand-in-hand. It’s granted us a unique lens on what truly matters, profoundly enriching our appreciation for life’s simple moments and for one another.”
When asked what advice she’d give to other parents living with a disability, Rachel mentioned to “ensure you have a strong support system around you. Don’t hesitate to ask for help – it’s a sign of strength. Approach each day as it comes – planning too far ahead can set you up for disappointment if your health fluctuates. Give yourself permission to put your needs first and rest. Your kids are resilient, and they will eventually understand that you weren’t being selfish when you prioritized your well-being: you were doing what you needed to do to get through each day and be present for them.”